Polymyalgia Rheumatica diagnosis

Started by diaduit, August 28, 2024, 04:10:44 AM

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diaduit

August 28, 2024, 04:10:44 AM
So after 4 years of wondering what the heck is wrong with me, it looks like finally I got an answer after so many doctors, specialists and natural practitioners and its PMR.

Usual treatment is high dose of steroids and tapering over 18 months....nope, not a chance am I doing that.

Anyone got other ideas of auto immune disorders and how to control them without steroids.

So far I'm taking high strength omega 3's and boswella caps plus rubbing in ACV and very very rarely and begrudgingly I take anti inflammatory pain med Vimovo if the pain is bad.

Don't bother with convincing me to take prednisolone, the cure is actually worse than the disease and its the only bloomin thing Rheumy's talk about.

maryslittlegarden

#1
August 28, 2024, 06:59:16 AM
I have a love/hate relationship with Prednisone.  It helps me breath better when my asthma acts up but I hate the side effects.
For a Child is born to us, and a son is given to us, and the government is upon his shoulder: and his name shall be called, Wonderful, Counsellor, God the Mighty, the Father of the world to come, the Prince of Peace

The Curt Jester

#2
August 28, 2024, 08:03:49 AM
Look into the AIP diet if you haven't already. 
The royal feast was done; the King
Sought some new sport to banish care,
And to his jester cried: "Sir Fool,
Kneel now, and make for us a prayer!"

The jester doffed his cap and bells,
And stood the mocking court before;
They could not see the bitter smile
Behind the painted grin he wore.

He bowed his head, and bent his knee
Upon the Monarch's silken stool;
His pleading voice arose: "O Lord,
Be merciful to me, a fool!"

james03

#3
August 28, 2024, 08:40:54 AM
1.  Check your Vitamin D and make sure you are "high normal".  Supplement as needed.

2.  Resveratrol.

3.  NAC

4.  1,3 Beta Glucan.

5. Quercetin.

The Vitamin D is a give-me.  I'd try one of the others at a time, give it a week or two, and try to devise an objective standard like "range of motion without pain" to gage the effect.
"But he that doth not believe, is already judged: because he believeth not in the name of the only begotten Son of God (Jn 3:18)."

"All sorrow leads to the foot of the Cross.  Weep for your sins."

"Although He should kill me, I will trust in Him"

Lynne

#4
August 28, 2024, 03:51:36 PM
I'm going to do more searching but here's a link.

https://carnivorecoaching.com/polymyalgia-rheumatica/

You could try it for 30 days and see if it helps.

Now I'm going to search for homeopathic meds.
In conclusion, I can leave you with no better advice than that given after every sermon by Msgr Vincent Giammarino, who was pastor of St Michael's Church in Atlantic City in the 1950s:

    "My dear good people: Do what you have to do, When you're supposed to do it, The best way you can do it,   For the Love of God. Amen"

Michael Wilson

#5
August 28, 2024, 04:21:44 PM
A family member has had the same thing and has been taking the Prednisone; it works pretty good for her; she couldn't hardly get out of bed in the morning before she began taking it.
"The World Must Conform to Our Lord and not He to it." Rev. Dennis Fahey CSSP

"My brothers, all of you, if you are condemned to see the triumph of evil, never applaud it. Never say to evil: you are good; to decadence: you are progess; to death: you are life. Sanctify yourselves in the times wherein God has placed you; bewail the evils and the disorders which God tolerates; oppose them with the energy of your works and your efforts, your life uncontaminated by error, free from being led astray, in such a way that having lived here below, united with the Spirit of the Lord, you will be admitted to be made but one with Him forever and ever: But he who is joined to the Lord is one in spirit." Cardinal Pie of Potiers

Heinrich

#6
August 28, 2024, 06:55:45 PM
Awkward Customer manages this with carnivore diet I think.  :pray2:
Schaff Recht mir Gott und führe meine Sache gegen ein unheiliges Volk . . .   .                          
Lex Orandi, lex credendi, lex vivendi.
"Die Welt sucht nach Ehre, Ansehen, Reichtum, Vergnügen; die Heiligen aber suchen Demütigung, Verachtung, Armut, Abtötung und Buße." --Ausschnitt von der Geschichte des Lebens St. Bennos.

Acolyte

#7
August 28, 2024, 07:59:20 PM
Found this dietary information.
https://www.medicalnewstoday.com/articles/321683

Magnesium Malate may be worth a try. (Anti-inflammatory)
"From the moment we awake in the morning, let us pray continually in the words of holy David: Turn away my eyes, that they may not behold vanity"
St Alphonsus

"I will set my face against you, and you shall fall down before your enemies, and shall be made subject to them that hate you, you shall flee when no man pursueth you"
Leviticus 26:17

"Behold, O God our protector : and look upon the face of Thy Christ" (Ps. 79:20) Here is devotion to the face of Jesus Christ as prophesized by David."
Fr. Lawrence Daniel Carney III

diaduit

#8
August 29, 2024, 02:18:34 AM
So I'm high in Vit D, last I checked I was a score of 80 which was top end in my local range of testing.

I'm doing low oxalate for 18 months now as per AC and it did help with other auto immune but not this one seemingly.

I take liposomal magnesium every day for 12 months so far and it does help.

The resveratrol is a good suggestion I hadn;t thought of.  I do think I had GCA for a couple of months last year, that was rough especially the jaw pain.  I am controlling that with simple Apple cider vinegar on my jaw line every morning and sometimes throughout the day but it doesn't help my neck and shoulder pain as much.  Funny though, covid went right through our town recently and I didn't pick it up, I'm the canary in the coal mine, if its out there I will catch it so I think ACV helped.

A Catholic functioning medicine practitioner who is a neuroscientist and pharmacologist that I attend, told me about hydrocortisone tablets instead of prednisolone, its 4 times weaker but it does work with the adrenals without shutting them down and helps with inflammation so I'm hoping to get them today and have them on the back burner.

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